Wednesday, November 26, 2008

What I'm thankful for...

Last year around this time, we met a wonderful little boy named Owen at a charity event in Buffalo. Owen wasn't a healthy little guy - he'd been in and out of the hospital for most of his young life. He had tumors everywhere. Yet, he smiled. He was so happy and full of life. I remember speaking to Ryan on our way home that night about how meeting Owen would forever change our lives.

I learned recently that little Owen passed away a couple of months ago. I pray that his family is at peace, especially during the holidays when we seem to miss our loved ones more than any other time of year. I hope they know that Owen was an amazing kid and that he changed people's lives.

I thought about Owen today. We took the kids to the Ft. Worth zoo for a little pre-Thanksgiving fun. There were kids everywhere! Will seemed to be having a blast, especially in the children's play area. I was thankful in that moment that he's here - that he's not sick like so many other little kiddos are. In spite of all of his issues, Will is our little angel, and I will never, ever take him for granted.

Which brings me to his Will-isms for the day.

*I'd bought Will a ball in the gift shop on our way out of the zoo. When I handed it to him, he replied "What is that?" Again, he responded appropriately and in context - a major plus for our little guy.

*Even more amazing is what happened when we got home. I broke out the camera show Will some of the pictures I took of animals today. I showed him the first picture and asked him what it was - he correctly responded "ELEPHANT." I showed him the next picture and again we got a correct response - "LION." So I said, "Okay smart guy - if you can name this animal, you're just going to blow mommy away." Sure enough, he hit the nail on the head by identifying the "FLAMINGO." I seriously teared up. This is a major accomplishment for Will. He's identifying objects and things correctly - an important stepping stone for the rest of his development!

What thrills me is that we've yet to implement the new treatments his biomed doctor gave us a couple of weeks ago. I can't wait to see what incredible improvements we see after that!!!

Tuesday, November 25, 2008

Such a good big brother...

So today's Will-ism...

We were hanging out in the backyard this afternoon (it was in the 70s today and just gorgeous here in Texas - it's supposed to be even warmer tomorrow) when Bryn got a little upset and started to cry. Normally, Will flips out and starts screaming right along with her. But today, he responded with "why are you crying?" It was very sweet.

And it looks like Miss Bryn is going to be on the move soon - she's working those back legs like she's getting ready to start crawling! Now that will be some trouble!

Monday, November 24, 2008

Today's Will-ism

Since Will continues to blow us away every day with his progress, I figure I need to start sharing some of his daily Will-isms. You know, for moms of normally developing children, these small things must seem so trivial. For us, they are major and worth celebrating.

Today we were at a place called Gattitown. It's like a Dave & Buster's for kids. Will was on a ride and when it stopped, he said "push the button!" I almost started crying. It means Will is making the mental connection that when the ride stops, you can push a button and it will go again. Now I just need to teach him that the ride costs money!

Some other highlights from today:

*Will grabbed my hand this afternoon and said "come here." He pulled me over to the cupboard and said "I want banana please." Unfortunately, we didn't have any because he had already eaten two today.

*At the chiropractor's office, Will came up to Bryn who was wearing a little beanie and said "hat."

*Most interesting though is the fact that Will's been walking around all day saying "Let's Go Buffalo!" Interesting, since no one has said that in our household since last December!

Sunday, November 23, 2008

Happy birthday Ryan!!!

Ryan's 33rd birthday was yesterday. After bowling with some friends, we came home and found Will still awake, so we decided to spend some time with him. He was his usual, giggly, cheerful self. I asked him to say "happy birthday daddy." Will thought about it for a second, then he busted out with his rendition of "happy birthday to you..." He sang the whole song! It was very sweet, and I know it meant a lot to Ryan!

Saturday, November 22, 2008

An update on Will

We had an appointment with Will's doctor the other day to go over his blood and urine test results. On the way to the doctor's office, I got all freaked out with the "what ifs." What if Will's tests show allergies to foods like soy, nuts, etc.? What if he has a gluten intolerance and we need to put him on a gluten-free diet? I definitely wasn't prepared for the what ifs, but figured there wasn't much I could do to prepare at that point.

Here's what we found out about our little guy (at least I'm going to try to remember as best I can - there was a lot of information in a short amount of time)...

Will has a ton of yeast in his system. This tends to be the case for kids like Will. The yeast can cause all sorts of issues, including hyperactivity which has been a huge issue for Will. In order to control the yeast, we need to limit Will's intake of foods that can cause yeast in his system - this includes things like bread, but also things with a lot of sugar like certain fruits (strawberries for example), juices and soda. We will also be giving Will a prescription anti-fungal that should also help with the yeast build up.

Will definitely has a dairy intolerance, so we are to continue the dairy-free diet. The tests didn't show any gluten intolerance, but we've also started to limit Will's gluten intake. Based on some of the other results, we have to limit Will's egg and red meat intake. Thank goodness he likes chicken and will occasionally eat some fish!

Another thing we were looking for was high metal levels in Will's system. His levels of lead and mercury weren't really high, but he did have elevated levels of aluminum in his system. As such, we are going to try chelation to see if we can get Will to process those metals out of his body. We'll be working on getting some additional urine samples this weekend to see if this cream the doctor gave us might do the trick!

So that's it in a nutshell. Hopefully we'll continue to see Will improve as we try these different dietary and biomedical interventions along with his traditional therapies. He continues to surprise us and give us hope everyday.

Friday, November 21, 2008

It's just not fair...

There is entirely too much cute stuff for baby girls out there - when I saw this hat, I couldn't resist. And Bryn had her first lemon experience today. Ryan just had to do this to my baby, but I enjoyed it as well!

A couple of firsts for Bryn

Bryn's hair is finally long enough that I can start putting bows in her hair. It's about time - I've had more people tell me how "handsome" she is because they think she's a boy, even when she's dressed in head to toe pink!


Even more exciting is that Bryn has started expanding her food selections. She happily ate her first veggie last week - carrots! She likes green beans too!

Friday, November 14, 2008

Happy half birthday baby Bryn!!!

Our little lady is 6 months old today. She weighed in at 18 lbs 4 oz (still in the 90th percentile) and is 27 inches long (also in the 90th percentile). She's still our big girl. We've been given the go ahead to start giving her some baby foods, so I'm certain we will have some fun pictures to share of mealtimes soon.

I've decided to change pediatricians though. Bryn is currently on a delayed vaccination schedule, so instead of getting a bunch of shots, she was only supposed to get one along with the Rotavirus vaccine which is given orally. Well, the pediatrician's office didn't have the Rotavirus vaccine because they changed distributors or something. The options I was given were: (1) take Bryn to the health department; (2) hunt down some Care Now mobile clinic she started talking about before I gave the nurse an "are you freakin' kidding me?" dirty look; or (3) do nothing since it won't harm her in any way if she doesn't get the third dose of the vaccine (which begs the question - why do they recommend it then if kids don't necessarily need it?). So I opted to do nothing and promptly booked a 9-month well check appointment for Bryn at another office. The new doctor should be a great choice for both kiddos since she apparently takes a holistic approach to treating children - NO MORE GETTING GRIEF OVER OUR DELAYED VACCINATION SCHEDULE! Woo!

Wednesday, November 12, 2008

Eat your heart out Beyonce!!!

We attended a wonderful event for a friend's charity last night at the Gucci store. I couldn't resist trying on the gown Beyonce is wearing on the current cover of InStyle. It was stunning, as was the other dress I tried on that was $10,000! This one is a little less than $8,000 - a bargain I guess. Needless to say, it's still at the Gucci store...

What happens when we're not looking...

Ryan and I were watching a very captivating episode of Ghosthunters last week when we realized Will was mighty quiet in the room next door. When we checked on him, we discovered that his curiousity had gotten the best of him...

Yep, that's Will in Bryn's exersaucer. He was just spinning around and having a grand ol' time. And he's gotten in it a couple more times since then, as well as Bryn's Pack 'N Play. I guess he figures if Bryn gets to use them, he does too!

Sunday, November 9, 2008

We're live!

The website for the show I'm hosting is live! Check it out!

www.thebitenetwork.com

Tuesday, November 4, 2008

YES WE CAN!!!

And we did! What an amazing feeling to be a part of this historical and awesome day. America finally managed to elect our first African American president. I honestly wondered if we'd ever see the day. And it's here! Woo hoo!

Sunday, November 2, 2008

SHUT UP!!!

Oh, what I would give for a good night's sleep! I thought I was going to get one last night but it didn't happen. I flew to Los Angeles yesterday morning on a 6:40 a.m. flight to attend a memorial service for a friend's mom. I settled in at my mom's house last night and got in the bed around 7:30 (which is 9:30 CST - not too far from my bedtime). I knew I had to get up around 3 a.m. to catch my 6 a.m. flight, so I was determined and ready to go to sleep. I didn't have much luck with that.

The first nuisance was my sister's dog Jinx. Jinx started barking and wouldn't stop. That went on for a while. Then someone in my mom's neighborhood was having a party and you could hear the constant thump of bass from DJ speakers. Not fun. Then, the phone started ringing. With the election right around the corner, my mom's been getting a ton of election-related marketing calls. I picked up the phone after it kept ringing and ringing and when I heard the recording, I hung up. Then the phone rang again. Same message, so I hung up. The phone rang yet again. Same message. Apparently if you don't listen to the message, it will keep calling back. I finally turned off the ringer. To cap the night off, just as I started dozing off to sleep, the neighbor's kids decided to head outside for a spirited pick up basketball game - at 10 o'clock at night. I didn't get to sleep until after 11!

The time change SUCKS, because it's not even 7:30 yet and it looks like I'll be in bed by 8 tonight. Barring any unforeseen parties, thunderstorms, etc., I should actually be able to get to sleep soon. Some rest will surely help me out with this gnarly cold I'm fighting!!!